The story of the family from Orikum town that passes the month with borrowed groceries. The mother of the ill daughter: From the disability payment of my daughter of 9700 leke, 7 thousand go only to the medicine, whereas the rest goes to the payment of the electricity and water.
By Telnis Skuqi
Orikum – The life of Margarita D., from Orikum, completely changed 15 years ago, time when she brought into life her first daughter. She dreamt to have a healthy child, but unfortunately she resulted to be with physical problems. “What can a woman do with a daughter that was born with disabilities and had to dedicate her whole life to her?”, says Margarita.
She lives with only 9700 lekë that her daughter benefits from the status of being disabled. “Only the medicine costs 7 thousand lekë, whereas the rest “disappears” for the energy and water”, expresses Margarita, who lives in a one storey building at the entrance of Orikum town. To her, her daughter is the most precious thing, whereas her husband is jobless for many years. “It is mistaken everyone that thinks that the economic aid saves you from the poverty”, underlines Margarita, the women who for one decade and a half has dedicated her life to her disabled daughter.
To Margarita the support of the state is alms. “The people with disabilities are confronted with many difficulties, especially financial ones”, she continues. Margarita is aware about “the possibility” of the state, but she asks from the social institutions to revise the financial package for the people with disabilities. “I do not pretend to get from the state 1 million leke per month, but it is a craziness that a family with four members to live with 300 leke a day”, underlines Margarita.
The mother of the disabled girl tells in details how she lives with her ill daughter and her husband. “During the winter we warm up with the blankets. We borrow the groceries, whereas my husband stays at home as there is no job for him in Orikum”, tells Margarita about her life. “We are totally living in misery”, she adds.
Gëzim Çapo, the mayor of Orikum municipality, assesses as problematic the living standard of the people with disabilities. “The local government has tried to facilitate their problems, but they lack the financial means”, expresses Çapo. According to him, the people with disabilities are the most unprotected people as there does not exit any possibility for their rehabilitation. “Margarita is one of the many cases in Orikum town, who live in the extreme poverty. The specialized institutions do not simply exist to give the 9700 leke, but they must work on the identification and protection of the people in need”, expresses Çapo.
Klementina Çuraj, the social administrator in Orikum municipality says that the local government treats 120 people with disabilities. “There are 120 different stories, and it is rather difficult to find any success story for this category, as there does not exist any midterm or long term policy. With short term policies we lead nowhere”, expresses Çuraj, meaning that the economic aid and disability payment is not a solution, but the problem in itself.
According to her, this small town has a lot of problems. Many families consist of elderly people, as their children live in emigration. “Due to the fact that this group forms the group in need that is in continuous increase there has to be considered the fact on offering services from the local governance as well”, underlines Çuraj.
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